bobod
Chancellery Guard
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Post by bobod on Apr 10, 2016 16:33:35 GMT
Kathryn's reading of her latest book is now available here. www.whatnoise.co.uk/index.php/audiobooks-and-audio-drama/38-life-love-and-caring-for-someone-with-progressive-supranuclear-palsyWhen Kathryn Leigh Scott's husband was diagnosed with progressive supranuclear palsy (PSP), a neurological disease for which there is (so far) no cure, it was a devastating time for both of them, not least because so little is known about the cause or treatment of a disease that affects some 20,000 Americans, a number similar to that of Lou Gehrig’s disease (ALS). Last Dance at the Savoy is both a personal story about Scott's husband, Geoff Miller, the founding editor of Los Angeles magazine, who lived life fully despite having a terminal illness, and a sharing of her insights on dealing with the day-to-day issues of caring for someone with a progressive neurological condition. Scott "often yearned for someone to figuratively take my hand and walk with me through the difficult times; I hope through this book I can reach out to you with encouragement and practical advice." Last Dance at the Savoy includes a resource guide that provides facts about prime-of-life diseases; contact information for support organizations, research studies and clinical trials; where to find handicap products and equipment; and recommended caregiving publications and family conferences. Contains a foreword by Yvette Bordelon, MD, PhD, a neurologist at UCLA whose clinical work involves the diagnosis and treatment of movement disorders. A percentage of royalties from Last Dance at the Savoy are donated to CurePSP.
Read by the author, this is an unabridged audio presentation. Running time approximately 520 minutes Written and Read by KATHRYN LEIGH SCOTT. My podcast with Kathryn discussing her book and the story behind it is still available here and here.
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